CMT-SORD Patients Needed! 🎥 #TheReelSORD – Reel Stories. Reel Voices. Reel Impact. We’re launching #TheReelSORD, a video-driven, patient-led campaign to show the world what it really means to live with CMT-SORD. No filters, no fluff—just authentic experiences, straight from the people who know it best. Whether it’s a quick clip, a day-in-the-life vlog, or a heartfelt message, your videos will help push for the FDA approval we all need. Are you in? 💙 💙 The Reel Struggle – Daily challenges, mob

We're partnering with TIME to raise awareness of polyneuropathy due to hereditary ATTR (hATTR-PN), a condition that is often misdiagnosed. Today, Mark shares his family's journey with the disease, honoring his father's memory and championing the cause for early diagnosis. Inspired by Mark's unwavering dedication, we are committed to amplifying awareness for #hATTRpolyneuropathy by advocating for testing, promoting education within the healthcare community, and striving to improve the lives of th

What you need to know about peripheral neuropathy