2.8K views · 133 reactions | “Heroes are made by the path they choose, not the powers they’re graced with.” -Thor’s friend, Ironman 隸‍♀️ Chris Hemsworth EB Superhero John Hudson Dilgen - EB imagines a world where no child has to live with EB long enough to experience the pain that he has. Help us turn John’s dream into reality by donating at the link below. 曆❤️ https://bit.ly/3RDmCWi | EB Research Partnership | Facebook
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2.8K views · 133 reactions | “Heroes are made by the path they choose…
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FacebookEB Research Partnership
At the 2nd annual #VentureIntoCures in 2021, Mayim Bialik interviewed Dr. Jean Tang and Dr. Andy South who are working to find a cure for Epidermolysis Bullosa. Since then we've seen remarkable progress on our mission towards a cure, including two FDA approved EB treatments. Our goal is to cure EB by 2030. Help us reach that goal by making a donation to life-saving research at https://give.ebresearch.org/give/335486?c_src=Facebook | EB Research Partnership
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At the 2nd annual #VentureIntoCures in 2021, Mayi…
904 viewsJul 23, 2024
FacebookEB Research Partnership
Momentum is evertyhing. We believe we can cure EB by 2030. Those living with EB are destined to fly. Go to ebresearch.org to learn how you can join us on this journey to cure EB – and pave a path for thousands of other rare diseases. #EBAwarenessWeek #VentureIntoCures #HealEB | EB Research Partnership
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FacebookEB Research Partnership
165K views · 3.3K reactions | "Say Hi" from the EB Research Partnership Venture Into Cures virtual event. Watch the full event video: https://pj.lnk.to/VICFullFP Stream or purchase "Say Hi" and "Matter of Time": https://eddievedder.lnk.to/MatterOfTimeFP | Eddie Vedder | Facebook
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2.1K views · 43 reactions | People with EB lack proteins that connect...
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Rare Disease Day is Fri, Feb. 28. Join Keanu Reeves, Kristen Bell, Ed Sheeran, John Legend and others to help find a cure for Epidermolysis Bullosa (EB), a series of life-threatening rare genetic disorders affecting the skin. | EB Research Partnership
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45 reactions · 5 comments | At #VentureintoCures @glenhansard shared his  "Song of Hope"  – a song that we hold close to our hearts when thinking of our relentless fight to #HealEB for those who need it most  | EB Research Partnership | Facebook
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